These resources have been co-produced for or by Unpaid Dementia Carers during creative sessions as part of the Bold Project. They can be used as peer support for someone caring for a loved one, as examples of the struggles Unpaid Dementia Carers face, read for your own self-care and reflection or shared with someone you think would benefit from them, if you need any guidance please get in touch at info@bold-scotland.org
Remember to ‘Bookmark this page’ so you can access our bold Free Resources whenever you want!
Creative writing
The bold Scribers – ‘Our 6 word stories’
Alex McEwan – Writing: born of frustration
Alex McEwan – Silence, is it ever silent?
Jackie Philip – In Respect & Admiration Letter to Elspeth
Willy Gilder – Silence, is there such a thing?
Poems
Jackie Philip – Silence
Lois Wolffe – I shout the loudest when…
Anne McDonald – The things I need to flourish are..
Willy Gilder – The things I need to flourish are…
The bold Scribers – Bold
Lois Wolffe – What does BOLD mean to me?
Lorna Reid – The things I need to flourish are..
The bold Scribers – Creativity
Alex McEwan – I am here because…
Ron Coleman – The things I need to flourish are…
Links and Resources for Unpaid Dementia Carers
Dementia Care
Clarke CL Wilkinson H Keady J and Gibb CE (2011) Risk and Dementia Care. Jessica Kingsley. Awarded 2012 British Medical Association Health and Social Care book of the year (Book)
Kerr D and Wilkinson H (2010) Night Time Care: Providing care through the night in residential and care homes. Jessica Kingsley. (Now also translated into German and Polish) (Book)
Clarke CL Wilcockson J Watson J Wilkinson H Keyes S Kinnaird L and Williamson T (2020) Relational care and co-operative endeavour – Reshaping dementia care through participatory secondary data analysis. Dementia 19(4):1151–1172. DOI: 10.1177/1471301218795353 (PR)
Watchman K Wilkinson H and Hare P (2019) Second edition Supporting Derek: A practice development guide to support staff working with people who have a learning difficulty and dementia. Pavillion Press. London
Walker E Wilkinson H McCauley A Forbes A (2010) Lets Talk About It: Using stories to improve care for older people: a practical guide. University of Edinburgh.
Care Commission Working Group (2009) Night time care checklist for care home inspectors. http://www.cqc.org.uk/guidanceforprofessionals/socialcare/careproviders/guidance.cfm?widCall1=customWidgets.content_view_1&cit_id=34772
Weaks D Wilkinson H Johanson R and McLeod J (2010) A counselling approach to delivering post-diagnostic dementia support. Healthcare Counselling and Psychotherapy Journal (Special Edition) (NPR)
Useful Organisations
- About Dementia – https://www.ageuk.org.uk/scotland/what-we-do/dementia/about-dementia/about-the-project/
- Age Scotland Training calendar – https://www.ageuk.org.uk/scotland/what-we-do/dementia/age-scotlands-dementia-training-project/dementia-training-calendar/
- All about vision – http://www.allaboutvision.com/over60/vision-changes.htm
- Alzheimer’s Disease International – http://www.alz.co.uk
- Alzheimer Europe – https://www.alzheimer-europe.org
- Alzheimer Research UK – http://www.alzheimersresearchuk.org
- Alzheimer Scotland – http://www.alzscot.org
- Brain Health Scotland – https://www.brainhealth.scot
- Care Inspectorate – https://www.careinspectorate.com
- Carers Scotland – https://www.carersuk.org/scotland
- Community Makers – https://communitymakers.co
- Connecting Scotland https://connecting.scot
- Created Out Of Mind – http://www.createdoutofmind.org
- DEEP – https://www.dementiavoices.org.uk/
- Deepness Dementia Radio – https://www.deepnessdementiamedia.com/dementia-resources
- Dementia Diaries – https://dementiadiaries.org
- Dementia Dogs – https://dementiadog.org/who-we-are/
- Dementia Friends Scotland – https://www.alzscot.org/our-work/dementia-friendly-communities/dementia-friends-scotland
- Dementia Positive – http://www.dementiapositive.co.uk/
- Dementia Services Development Centre, University of Stirling – http://dementia.stir.ac.uk/
- Edinburgh Centre for the Research on Dementia (ECRED) – https://www.ed.ac.uk/health/research/centres/ecred
- Edinburgh & Lothians Health Foundation – https://www.elhf.co.uk/
- Eric Liddell Centre – https://www.ericliddell.org/
- Highland Senior Citizens Network – http://www.hscn.co.uk
- Innovations in Dementia – http://www.innovationsindementia.org.uk
- Kirrie Connections Meeting Centres – https://www.kirrieconnections.com/meeting-centre
- Memory Bridge – https://www.memorybridge.org/
- NHS Choices – http://www.nhs.uk/Conditions/Pages/hub.aspx
- NHS Greater Glasgow and Clyde – http://www.nhsggc.org.uk/your-health/health-services/arts-and-health/
- Our Connected Neighbourhood – https://ourconnectedneighbourhoods.org.uk
- Sea Salt Learning – https://seasaltlearning.com
- Scottish Dementia Alumni – https://www.dementiavoices.org.uk/group/dementia-alumni-glasgow/
- Scottish Government National Dementia Strategy – https://www.gov.scot/publications/scotlands-national-dementia-strategy-2017-2020/
- Scottish Government – https://www.gov.scot/publications/promoting-excellence-2021-framework-health-social-services-staff-working-people-dementia-families-carers/
- Spring Social Prescribing – https://www.springsp.org
- Tide, Together in Dementia everyday – https://www.tide.uk.net/
- Together in this – http://togetherinthis.com/
- Teepa Snow – http://teepasnow.com/
- Young Dementia UK – https://www.youngdementiauk.org/
Networks
- Arts 4 Dementia – https://www.arts4dementia.org.uk/
- Dementia and Cultural Narrative Network – https://dementia-culture.wixsite.com/network/arts-dementia – https://www.facebook.com/DemNarrCulture/
- London Arts in Health Forum – http://www.lahf.org.uk/
- Reimagining Dementia, a Creative Coalition for Justice – https://www.facebook.com/reimaginingdementia
- Royal Society for Public Health – https://www.rsph.org.uk/
Life Changes Trust Legacy Partners
- About Dementia – https://www.ageuk.org.uk/scotland/what-we-do/dementia/about-dementia/
- Acorn Shed Music – https://acornshedmusic.co.uk/
- Age Scotland – https://www.ageuk.org.uk/scotland/
- Age Scotland, Orkney – https://www.ageuk.org.uk/scotland/orkney/
- Ceartas – https://www.ceartas.org.uk/
- Deepness Dementia Media – https://www.deepnessdementiamedia.com/
- Dementia Friendly Prestwick – http://www.dementiaprestwick.co.uk/
- Glasgow’s Golden Generation – https://www.glasgowgg.org.uk/
- Meeting Centres – https://meetingcentres.org/
- My Sporting Memories – https://www.sportingmemoriesnetwork.com/who-we-are-scotland
- Playlists for Life - https://www.playlistforlife.org.uk/
- STAND – https://www.dementiavoices.org.uk/group/stand-kirkcaldy/
- The Village Storytelling Centre – https://www.villagestorytelling.org.uk/